In Belgium, the Federation RaDiOrg for rare disorders publishes propositions for a better future for people living with a rare disorder.

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The current Belgian Plan for Rare Disorders was established in 2013. This is why RaDiOrg together with the workgroup of the Belgian College for Human Genetics and Rare Disorders sent these propositions to all political parties. They were positively welcomed. The Minister of Health described them as a marker for the future project of the National Plan for Rare Disorders.

(orphanews 2024.05.23)